I didn't run a single step this week... So I'm not going to do a day by day recap... There was so much going on. Matt working the expo, stalking the weather, finishing up progress reports at school before vacation, getting my gear in order, getting Easter baskets prepared, balancing parenting and teaching and my own shit all while my husband wasn't home because he works the marathon events. He also was flying out literally at 6pm the Monday of the marathon. I had to cancel my therapy because it was too much I wasn't able to balance it all. I had to bring the girls to the expo by myself because my sister-in-law had a baby so my mom was babysitting for them. I had to pee in a bottle under the prudential center because the traffic was so bad we got stuck there. I was exhausted- the week was exhausting. People joked that the marathon would be the easiest part. To be determined I thought. I was tired.... but it was a great distraction. Below is a video I created at some point in the time I wasn't running. It helped me reflect on my journey and put things in perspective. Anyone that has had to go through the rollercoaster of fPaes will understand... and I hope it can be relatable and bring you hope. It reminded me that the 26.2 miles I was actually dreading is incredibly short compared to the years I've put in to get to that starting line. I made peace with whatever the outcome was and just wanted to get on that bus. I have prepared in every way I physically could and now I just needed to prepare myself mentally.... and the best way for me to do that was to reflect on how far I have come and go forward with a tremendous amount of gratitude. Let's do this thing!
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Hello!Welcome to my blog! I've been blogging for a long time on various platforms. My intention has never been to reach the masses, but rather to give myself a chance to reflect and journal. I feel it at least challenges me to be somewhat coherent, however you can expect ramblings and grammatical incorrectness here!
I've recently been diagnosed with CECS and fPAES and had it treated with BOTOX of all things... So I suspect to see more and more people looking for answers with that in the future and hope to continue blogging so there will be easy to access follow-ups as that was helpful for me. NOTE: Apologies that some of the pictures incorrectly load sometimes. I try to keep up with the glitches, but can't always! Hope it doesn't impact the blog experience for all the PAES visitors. My Past
January 2023
The Beginning |